When parents act against doctors’ advice and are perceived by the medical community as putting their child in danger (whether rightfully or wrongfully), there is a police chase, a hearing, and the parents are separated from their son .

When doctors act against parents’ concerns and put a child in grave danger, no one pays attention.
My son was killed when an inappropriate procedure was performed by doctors, despite our concern that the procedure could put his life in jeopardy. But we are ‘just parents’, so the police turned the other way.

Why did I allow my son to have this procedure?  Because they told me he would be safe, and I was scared not to.  If I took the chance and Rowan ‘dropped dead in the playground,’ there would have been an investigation, and my parenting would have been questioned.   I would have been accused of “acting against medical advice”, and then what would have been the consequence?