Archives for posts with tag: anesthesia
Rowan, in the waiting room, just before he is killed

Rowan, in the waiting room, just before he is killed

I just heard this report about 30 minutes ago when driving and had to pull off the road I was so angry and upset. So – finally, here it is; almost EXACTLY what we have been saying about how discrimination led directly to Rowan being killed under the care of doctors at Rady Children’s Hospital.

This is a very well researched and in depth report from NPR’s California Report into the serious consequences of unconscious bias and discrimination in medicine. We have shouted exactly the same message as loud as we can, but have been ignored by nearly all medical professionals, most other people and especially the media, including San Diego’s NPR station (Rowan’s mother contacted NPR six times over the past year).

I agree that this story should be newsworthy, but why did NPR leave Special Needs Discrimination out of their report? Why was Rowan’s story (who was killed by an almost identical method of discrimination) ignored, while this story was highlighted?

Rowan and those with special needs and disabilities are just not deemed newsworthy … despite suffering exactly the same stereotyping and discrimination as other minority groups. They are just …….. invisible.  Well, they aren’t invisible to me, and they certainly shouldn’t be to society.

If you choose to read this report, and are a person who has decided to ignore Rowan’s story, I hope you consider what YOUR biases are. To say you don’t have any unconscious biases is to ignore the problem that this report describes in detail, providing concrete research and examples from both doctors and patients to back it up.

Discrimination in healthcare was real for Rowan, and it was the direct cause of his death. Rowan’s life mattered. Everything that happened to those interviewed for this report happened to Rowan. For the most part they were lucky and survived. He did not and the world is a lesser place without him.

http://ww2.kqed.org/stateofhealth/2015/08/03/doctors-struggle-with-unconscious-bias-same-as-police/

To learn more about Rowan’s story please visit here

It is so profoundly upsetting to see reports like this come out. Even though they validate everything we have fought to have recognized about why Rowan’s death was completely preventable, it will always be too late for Rowan……

The summary statement in the abstract for this report states: “We conclude that Williams syndrome confers a significant anaesthetic risk, which should be recognised and considered by clinicians planning procedures requiring general anaesthesia.”

When reviewing the existing literature on WS and anaesthesia, due to the low quantity and quality of these reports, they also conclude “In the opinion of the authors this makes it impossible to designate any patient with Williams syndrome ‘lowrisk’ for anaesthesia or sedation.”

http://www.ncbi.nlm.nih.gov/pubmed/25233176

Anaesthesia complications 2014

 

Copyright © rowansmile 2014. All Rights Reserved. No part of this website or any of its contents may be reproduced, copied, modified or adapted, without the prior written consent of the author. Rowan was killed at Rady Children’s Hospital as a direct result of the careless and unnecessary use of general anesthesia for a “routine” outpatient diagnostic procedure.

It is widely known in current research that general anesthesia should not be given to a person with Williams Syndrome without great care. Yet his anesthesiologist, Dr. Kaya agreed to a signed document that she “was well-versed in the anesthetic risk associated with Williams Syndrome”. She then administered anesthesia to Rowan without taking any of the known precautions and did not administer Williams Syndrome appropriate life-saving procedures after Rowan’s cardiac arrest. Dr. Kaya is not considered a criminal. Instead, she is protected under the United States healthcare system. His cardiologist, Dr. Raymond Fripp, who insisted on using anesthesia to diagnose the very thing (coronary artery stenosis) that put Rowan at high-risk, is still practicing in high regard today. The Chief of Cardiology, Dr. John Moore, who falsified documents regarding the reason for Rowan’s death and the reason for his anesthetic procedure, is still praised among his peers. How is this possible?
We believe it is possible because the very people that are meant to oversee these doctors’ practices turned a blind eye to the crime that was committed (Donald Kearns, MD MMM, Rady Children’s Hospital; Christopher J Durovich, James E Schmerling, Children’s Hospital Association). The very establishments these doctors work for feed their hubris, while showing them that they will be immune to their own mistakes and ignorance.
Rowan had a high-risk of sudden death if given general anesthesia. Otherwise, he was a happy and energetic toddler whose heart was built differently than yours or mine. If I was notified of the risk of a child’s peanut allergy solely by her parents, and I dismissed their concerns and intentionally fed that child a bowl of peanuts, I would face criminal charges. Yet doctors of patients with Williams Syndrome routinely give anesthesia to these children without precaution, despite protests and concerns from their parents. And when those doctors kill a child, they are protected? We ask, how and why is this possible?
We have faith that you, our community and our society, will continue to right this wrong for those who are still lucky enough to have hope.

 

 

 

Copyright © rowansmile 2014. All Rights Reserved. No part of this website or any of its contents may be reproduced, copied, modified or adapted, without the prior written consent of the author.

This is the bill that arrived in today’s mail.

You’ll see the note at the bottom says: “failure to comply with this request may result in your account being placed with our collection agency immediately”.

Each time I receive these letters in the mail,  I feel like I am being delivered the smoking gun that murdered my child, and asked, “Oh, and can you pay for this?”

The bill for the anesthesia that killed Rowan.  Five months later, instead of admitting that Rowan was killed, the hospital chooses to keep adding insult to our tragic loss..

The bill for the anesthesia that killed Rowan. Five months later, instead of admitting that Rowan was killed, the hospital chooses to keep adding insult to our tragic loss..

Our greatest wish was to be a part of a community where we felt safe.  Our intention is to help fill the gap in the community where Rowan was left behind.

We are thankful that the Williams Syndrome Association website was updated today (May 21, 2014).  Though too late to avoid our family’s loss, we hope that another family will benefit from this information.

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