Archives for posts with tag: sudden toddler death

Peace as the world commonly understands it comes when the summer sky is clear and the sun shines in scintillating beauty, When the pocketbook is full, When the mind and body are free of ache and pain.. but.. true peace… is a calmness of soul amid terrors of trouble, inner tranquility amid the howl and rage of the outer storm..

Martin Luther King Jr.

We will never be able to lose the vision of our son being gassed to death before our eyes, without even the simplest of care or precautions afforded to other children.. because of who he was wrongly perceived to be.  But we will work to find the peace that lies within that terror.

We will always be thankful for, and will always remember, those who faced that terror along with us.  The friends and strangers who left their comfort zones to face a horrible injustice.  The doctors, researchers, and nurses who risked their own reputations to stand up for what was right.  Though we have been unsuccessful in our efforts for justice, we at least have the knowledge that there are courageous people who chose to step up and act.  Through you, and with you, we hope to find peace.

Thank you, with Rowan in our hearts

Copyright © rowansmile 2014. All Rights Reserved. No part of this website or any of its contents may be reproduced, copied, modified or adapted, without the prior written consent of the author. Rowan was killed at Rady Children’s Hospital as a direct result of the careless and unnecessary use of general anesthesia for a “routine” outpatient diagnostic procedure. It is okay to post a link to this page.

Twelve months after Rowan was killed, we mark the end of a chapter.

We now know, for certain, that Rowan was killed.  That Rowan was not meant to die that day.

We now know, for certain, why Rowan was killed.  Because we, as Rowan’s parents, were never heard.  Because Rowan, our amazing son, was never seen.

We now know, for certain, how Rowan was killed.  Rowan went into cardiac arrest, along with at least 40 other people with William’s Syndrome, as a result of the interaction of anesthesia with his body.  Scientists will continue to work out the minutiae of this interaction, but the minutiae is not necessary to know how these wonderful people were killed.

Twelve months later, we have lost a battle.  Rowan’s death will serve as another example of a wrongful death.  Another example of doctors and hospitals hiding behind the strength of their institution.  Another example of people with disabilities not being seen for who they are.  Another example of parents trying to fight a broken system and losing.  Another example of nobody saying sorry to a five year-old for killing her little brother.

We have lost a battle.  But losing this battle didn’t really matter, because our family had already lost our war.  Each day of that battle, we walked empty handed, without our son in our arms.  Each day, we knew that we had already lost everything that mattered, our most precious right as parents already taken away.

For those that choose to continue, we will keep our how to take action page updated, and welcome the use of our story to conquer the bigger problems for which Rowan’s death serves as a mere example.  We hope that, if you do decide to continue this battle, you will choose to do so in memory of Rowan.

For us, we will continue our peaceful protest, until the day that we can no longer speak.  We will continue to remember Rowan, and share his story.  We will remember loudly the wonderful life that we had with Rowan, and our joyful child that was taken from us too soon.  Please join us, in always remembering, and take every opportunity, along with us, to REMEMBER ROWAN LOUDLY.

Copyright © rowansmile 2014. All Rights Reserved. No part of this website or any of its contents may be reproduced, copied, modified or adapted, without the prior written consent of the author. Rowan was killed at Rady Children’s Hospital as a direct result of the carefree and unnecessary use of general anesthesia for a “routine” outpatient diagnostic procedure. It is okay to post a link to this page.